Life with TBI

You know...I've said this before, and I will say it again...

Life with a person that has a TBI is not fun. 

Yes, there are good days, but lately the bad days outnumber the good.

We have just been coming off of a bad MONTH!!!

And, I got my usual (estimated) 4 hours of sleep last night and was woken up by someone laughing really loud...we won't say who. (wink)

So, what have I been doing?  Well, homework for one.

And, scrolling Facebook (that's a whole other post).

While scrolling, I came across this particular post from BrainLine.org about Trust.

You see, since DH had his surgery, and we found out that there was brain damage, it has been a battle for us.  Lately, there is no trust.  He has taken to password protecting all of his gadgets, and of course deleting text messages etc.  All my life it's been hard for me to trust people to begin with.  It is a very precious commodity that I do not give out often.  

The man that I fell in Love with is gone.  What is left is a person that is angry all the time, usually at me.  I live in a small town where there are no support groups that I know of.  And usually, when I turn to my friends, they say to leave him.  How can you leave someone when you KNOW THAT THE PROBLEM IS THE INJURY AND NOT YOUR SPOUSE?  

I know that he regrets yelling at me, most of the time.  I know that he is having a hard time understanding his feelings.  And to top all that off, is the added stress of graduating college (I'm so proud of him) and not being able to find a job.  It takes all of my strength to talk him down from a rage.  And, when Abby from BrainLine.org mentioned that there was "a look in his eyes" that she had never seen.  I KNOW THAT LOOK!!! I've experienced it.  And it is dangerous at times.  

When DH looks at me like that, I KNOW that it's not him, his eyes literally narrow.  It is a scary look, but I've learned to cope with it.  Yes, my marriage isn't perfect and I know I'm not the easiest person to get along with...but I also know that it takes strength to stay in the marriage.  Everyone tells me to leave, but I can't leave, because I know that there are times when the old hubby will filter through to the surface, and he will laugh and make jokes about me.  And those times are what keeps me going...however hard it can be.

The birth of my Rogue from Ki Mobility

Since I've been trying really hard to raise the funds for the copay for this wheelchair, I figured I would share a little about the birth of it.  

When I went to Texas Mobility to get the whole process started, I had no clue what to do, what to pick or anything.  All I knew was that my doctor ordered a custom wheelchair with the Smart Drive.  Mary from the Tyler store was wonderful.  She got with me and suggested the Rogue from Ki Mobility.  It's a small company, but totally awesome.  When we measured me for my wheelchair, I had no idea what to do or how to order anything.  

So, I (of course) picked purple, and started doing research on the Rogue and Ki Mobility.  I would go several times to the website and look at my future chair and hope I could get it soon.

My gofundme wasn't going very much, even with the rewards I offered, so I made the decision to use my financial aid from school and pay for it, which caused a lot of problems at home.  

(So, please consider donating if you haven't, or even sharing the page to help deflect the costs)

After it was ordered, the waiting began.  I would go around on campus and tell myself...3 weeks...2 weeks...next week...and then 1 day.  I was counting down the days until it would be easier for me to get around.  

So, without further adieu, here are some pictures of the birth of RoadRunner (which is what Becca and I named my wheelchair).  

Here is the chair being cut and welded:

The excitement was building...then I got these pictures:

The color was AWESOME!!

And then I got these pictures:

This is what my chair (mostly) looks like.  And then they fit that sucker into this itty bitty box:

So, this is the birth of my wheelchair.  And then...the first full day using it:

It is so much easier to get around campus, and I'm building a LOT of arm muscles!  I've made my backpack lighter, and got rid of the umbrella (LOL).  Basically...I'm getting used to my chair.  Look for more posts of my wheelchair antics and follow me through this journey or learning how to use it, and enjoying getting around a LOT more!!